Unique But Not Alone...life with the Alpha Girls

Random thoughts from a severe preeclampsia survivor and two time NICU mom who passionately believes in helping to find a cure for her daughters' genetic disorder: Alpha-1 Antitrypsin Deficiency.

Monday, July 26, 2010

Alpha-1 Antitrypsin Deficiency Video on Genetics

GENETICS from Alpha-1 Association on Vimeo.

Posted by Jen at 11:50 PM No comments:
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Labels: Alpha-1, Alpha-1 Antitrypsin Deficiency, Genetic Disorder

Tuesday, July 20, 2010

Alpha-1 Antitrypsin Deficiency in Children Video

CHILDREN from Alpha-1 Association on Vimeo.

Posted by Jen at 10:22 PM No comments:
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Labels: Alpha-1, Alpha-1 Antitrypsin Deficiency, Alpha-1 Liver Disease

Thursday, July 08, 2010

Summer Fun










Posted by Jen at 9:15 PM No comments:
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Labels: Grace, Meghan, Vacation
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About Me

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Jen
I'm a 30ish mom to 2 beautiful daughters (ages 10 & 8) who have Alpha-1, a genetic disorder of the liver.
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No one is useless in this world who lightens the burdens of another.
~ Charles Dickens
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Unique But Not Alone...Life with the Alpha Girls by Jen is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.

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  • Alpha Girls
  • Liver Families
  • Preeclampsia Survivors Blog
  • Preeclampsia Survivors
  • Alpha-1 Association
  • Alpha-1 Foundation

Blogs I Love to Read

  • Falling Down is Also a Gift
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  • In Her Shoes
  • Ordinary Miracles
  • Baby Tea Leaves
  • Mother Words: Mothers Who Write
  • Mama Really Needs a Nap...
  • Belphia
  • Why I Failed Math
  • Yodeling Elkos
  • Hands Not Full
  • Canadian Thoughts in Texas
  • Imagine Bright Futures II
  • Simple Joys in Life
  • The Preemie Experiment
  • Really My Life
  • Neonatal Doc
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