Random thoughts from a severe preeclampsia survivor and two time NICU mom who passionately believes in helping to find a cure for her daughters' genetic disorder: Alpha-1 Antitrypsin Deficiency.
Saturday, October 30, 2010
Thursday, October 28, 2010
Monday, October 25, 2010
School Days 2010
It is time for a long overdue update on the girls, as we recently had parent-teacher conferences.
Grace's teacher reports that she is doing quite well in 3rd grade. Hooray for Gracie! Grace is now reading to learn rather than learning to read. This is more of a challenge for her, but she seems to be embracing that challenge quite nicely. I'm super proud of her ability to express herself in writing. Her English spelling is atrocious, but that is to be expected considering her primary way of being taught is in German. Grace enjoys writing her own stories, drawing maps to find buried treasure, or reading Harry Potter books along with anything Junie B. Jones. She rapidly learns her math, which still amazes me. She loves learning to write in cursive, and is enjoying being a "big kid" at school. Finally, Grace still tends to be a bit more shy than her classmates. She is easily embarrassed by speaking in front of her peers, but overcomes that with some time and patience.
Meghan's teacher tells us that she is advanced with her printing and drawing, which was nice to hear. She is rapidly acting like one of the big kids at school even though she is still tiny for her age, coming in at a whopping 35 pounds. She is doing very well with her spelling words in German, and learning to add and subtract. Reading is rapidly coming to her in much the same way Grace acquired English reading...all by herself. She sometimes gets the words wrong by guessing, but I like that she just goes full steam ahead Meghan-style. Being the true Meghan that she is, we also learned that Meghan has some trouble with patience for others in her class. However, she has infinite patience for herself. LOL We also were not surprised that she is easily distracted by others chatting, although she does not initiate the chatting. Meghan has two best friends, Miana and Sophia. They love to play together at recess. Overall, Meghan is growing up fast, especially chasing after her big sisters.
So, it was a good report all-in-all. Way to go my beautiful daughters! Mommy is so proud of you and your accomplishments.
Grace's teacher reports that she is doing quite well in 3rd grade. Hooray for Gracie! Grace is now reading to learn rather than learning to read. This is more of a challenge for her, but she seems to be embracing that challenge quite nicely. I'm super proud of her ability to express herself in writing. Her English spelling is atrocious, but that is to be expected considering her primary way of being taught is in German. Grace enjoys writing her own stories, drawing maps to find buried treasure, or reading Harry Potter books along with anything Junie B. Jones. She rapidly learns her math, which still amazes me. She loves learning to write in cursive, and is enjoying being a "big kid" at school. Finally, Grace still tends to be a bit more shy than her classmates. She is easily embarrassed by speaking in front of her peers, but overcomes that with some time and patience.
Meghan's teacher tells us that she is advanced with her printing and drawing, which was nice to hear. She is rapidly acting like one of the big kids at school even though she is still tiny for her age, coming in at a whopping 35 pounds. She is doing very well with her spelling words in German, and learning to add and subtract. Reading is rapidly coming to her in much the same way Grace acquired English reading...all by herself. She sometimes gets the words wrong by guessing, but I like that she just goes full steam ahead Meghan-style. Being the true Meghan that she is, we also learned that Meghan has some trouble with patience for others in her class. However, she has infinite patience for herself. LOL We also were not surprised that she is easily distracted by others chatting, although she does not initiate the chatting. Meghan has two best friends, Miana and Sophia. They love to play together at recess. Overall, Meghan is growing up fast, especially chasing after her big sisters.
So, it was a good report all-in-all. Way to go my beautiful daughters! Mommy is so proud of you and your accomplishments.
Monday, October 18, 2010
Sunday, October 10, 2010
Another Tooth Gone
Grace lost her upper right lateral incisor today. She was quite excited, and Meghan was not so happy since her teeth are just a teensy bit wiggly.
Saturday, October 02, 2010
Pink is the New Jen
The last two weeks have been rough. One of my dearest sisters, Kristen, has been diagnosed with breast cancer. She is only 36, and is the proud mama to a 10, 7, 4, and 8-month old. She has just begun her chemo process. And, no, we do not have a family history of breast cancer. Not that it matters anyway. Kristen is still fighting for her life.
It is odd, but I've never been in this position before. You may ask, "What position?"
Well, I've never been the one, who sits on the sidelines watching the nastiness unfold. In the past, I've been the one who nearly died from severe preeclampsia twice, watched my precious fragile babies fend off prematurity, and agonized over the fact that both of my daughters have Alpha-1 Antitrypsin Deficiency which brings on liver and lung disease.
Me. I was in the thick of it. I cheated death. My girls cheated death.
Me. I've embraced and immersed myself into the existence I had not planned for myself at the outset.
Me. I've been the one in the fish bowl, where all peer in wondering how and what to do.
Being a supporter on the side lines is an odd place for me to be.
It doesn't quite seem to fit yet. I'm so used to my preeclampisa, prematurity, sensory processing disorder, and Alpha-1 Antitrypsin Deficiency awareness and advocacy starring roles. How on earth can I integrate another one? And a role where I get to feel powerless to provide any real help.
Gosh to integrate another role...hmmmmmmmmm. This is going to take some time, but I know myself. I'll embrace the pink. Kristen is so worth it, and so is her family.
Hopefully, my perspective on being the patient and dealing with health challenges will help Kristen in some small way.
Gosh, I want to take those cancer cells out of her in some magic way.
Life threw Kristen a curve ball, and I'm going to help her hit it out of the park.
It is odd, but I've never been in this position before. You may ask, "What position?"
Well, I've never been the one, who sits on the sidelines watching the nastiness unfold. In the past, I've been the one who nearly died from severe preeclampsia twice, watched my precious fragile babies fend off prematurity, and agonized over the fact that both of my daughters have Alpha-1 Antitrypsin Deficiency which brings on liver and lung disease.
Me. I was in the thick of it. I cheated death. My girls cheated death.
Me. I've embraced and immersed myself into the existence I had not planned for myself at the outset.
Me. I've been the one in the fish bowl, where all peer in wondering how and what to do.
Being a supporter on the side lines is an odd place for me to be.
It doesn't quite seem to fit yet. I'm so used to my preeclampisa, prematurity, sensory processing disorder, and Alpha-1 Antitrypsin Deficiency awareness and advocacy starring roles. How on earth can I integrate another one? And a role where I get to feel powerless to provide any real help.
Gosh to integrate another role...hmmmmmmmmm. This is going to take some time, but I know myself. I'll embrace the pink. Kristen is so worth it, and so is her family.
Hopefully, my perspective on being the patient and dealing with health challenges will help Kristen in some small way.
Gosh, I want to take those cancer cells out of her in some magic way.
Life threw Kristen a curve ball, and I'm going to help her hit it out of the park.
Subscribe to:
Posts (Atom)