Random thoughts from a severe preeclampsia survivor and two time NICU mom who passionately believes in helping to find a cure for her daughters' genetic disorder: Alpha-1 Antitrypsin Deficiency.
Sunday, November 28, 2010
For Kripity
Kripity, Kripity, doc
Sister of mine
Cancer lit up your clock
Giving its sign
Reminding us all
Of life’s preciousness
Scaring us all
Scaring you most
If I could
Will it away
I’d take it away
But what I know best
Is that fear
Brings change
Change for the good
Change for the better
It isn’t easy
To be the medium
Delivering the message
To help others remember
That life isn’t about
Having the newest car
The biggest, newest house
The best designer purse
It isn’t easy
To be the one
Wearing cancer
For all to see
You know life
Comes in those moments
In between
Where
A smile and a giggle
Light up your life
A warm embrace
Pours life into your soul
A quiet moment
Seals up your cracks
And settles into your bones
Allowing your core to emerge
Poignant moments
With the ones you love
Reveal the true meaning
Of your existence
Life is rarely
Easy and carefree
It has hills for climbing
But also for coasting down
We slip and slide
Cry and laugh
Beg and plead
For your returned health
Remember
You are amazing
Resilient, adored
And most of all beautiful
Your strength
Shines from within
Pulling you up
In your darkest moments
Lifting you up
Into the light
So you can take back
Your cancer-free life
I love you.
Thursday, November 25, 2010
Sunday, November 21, 2010
Grace Playing Ode to Joy
Grace Ode to Joy Violin from Alpha Girls on Vimeo.
Wednesday, November 10, 2010
Tooth Loss
Grace lost her upper left lateral incisor on Saturday, November 6th.
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