Unique But Not Alone...life with the Alpha Girls

Random thoughts from a severe preeclampsia survivor and two time NICU mom who passionately believes in helping to find a cure for her daughters' genetic disorder: Alpha-1 Antitrypsin Deficiency.

Showing posts with label Video. Show all posts
Showing posts with label Video. Show all posts

Sunday, November 21, 2010

Grace Playing Ode to Joy

Grace Ode to Joy Violin from Alpha Girls on Vimeo.

Posted by Jen at 12:15 PM No comments:
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Labels: Grace, Video, Violin

Meghan's 1st Attempt at Violin

Megs 1st Violin Playing from Alpha Girls on Vimeo.

Posted by Jen at 11:50 AM No comments:
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Labels: Meghan, Video, Violin

Sunday, February 21, 2010

Fun

Posted by Jen at 11:07 AM No comments:
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Labels: Grace, Meghan, Video
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About Me

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Jen
I'm a 30ish mom to 2 beautiful daughters (ages 10 & 8) who have Alpha-1, a genetic disorder of the liver.
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No one is useless in this world who lightens the burdens of another.
~ Charles Dickens
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Unique But Not Alone...Life with the Alpha Girls by Jen is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.

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  • Alpha Girls
  • Liver Families
  • Preeclampsia Survivors Blog
  • Preeclampsia Survivors
  • Alpha-1 Association
  • Alpha-1 Foundation

Blogs I Love to Read

  • Falling Down is Also a Gift
  • In the Life of a Child
  • Following Elias: The Boy that Could
  • A Woman With Hobbit Feet
  • I Find Myself a Mother
  • Against All Odds
  • In Her Shoes
  • Ordinary Miracles
  • Baby Tea Leaves
  • Mother Words: Mothers Who Write
  • Mama Really Needs a Nap...
  • Belphia
  • Why I Failed Math
  • Yodeling Elkos
  • Hands Not Full
  • Canadian Thoughts in Texas
  • Imagine Bright Futures II
  • Simple Joys in Life
  • The Preemie Experiment
  • Really My Life
  • Neonatal Doc
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