Tuesday, June 05, 2007

Fundraising for a Cure!

Hello Friends and Family,

It is time for the Wisconsin Liver Walk on Saturday June 16th at Frame Park in Waukesha, WI.

Charlie and I are captains of Team Alpha-1. We walk in honor of our very special daughters, Gracie and Meghan, who have Alpha-1 Antitrypsin Deficiency, a genetic disorder that damages the liver, but also one that causes irreversible lung damage over time. I walk in memory of my cousins, Amy, Beth, and Pam, who became Alpha Angels too early in life and also walk for all Alphas courageously battling their disease on a daily basis. Long live the Alphas!

MRB Aug2006GAB Aug2006

We know a cure will eventually be found, and it is through efforts like this that you can easily contribute to the cause. This year, we decided to raise funds for 3 very worthy Alpha-1/liver organizations. If you would like to sponsor us in our fundraising efforts, please make a tax-deductible donation to one of the following organizations:

Alpha-1 Foundation: The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency. Our Team Alpha-1 fundraising page for the Alpha-1 Foundation is:
http://www.firstgiving.com/teamalphaWI2007

American Liver Foundation - Wisconsin Chapter: The nation's leading nonprofit organization promoting liver health and disease prevention. ALF provides research, education, and advocacy for those affected by liver-related diseases. Our Team Alpha-1 fundraising page for ALF-WI is:
http://www.active.com/donate/wiliverwalk2007/teamalpha1

The Alpha Pack: Its mission is to offer support to those in the Wisconsin area affected by the hereditary condition Alpha-1 Antitrypsin Deficiency (AATD), and educate the local community through meetings, events, and/or literature. Funds donated to The Alpha Pack benefit local Wisconsinites affected by AATD, our awareness activities, and national research studies to find a cure. You can make an online donation by clicking Donate and then Online in the navigation bar on the top of this web page: http://www.thealphapack.org/ A blue dashed box appears on the page. Click Make a Donation to send a donation using PayPal.

If you'd like to join us for the walk, please let us know. We'd love to have you on Team Alpha-1. The walk is a leisurely 1.5 mile stroll along the Fox River. It isn't a race. Join us afterward for a picnic in the park. You can register for the walk by going to: http://www.active.com/donate/wiliverwalk2007 The registration fee is $15.00 per person over the age of 13.

Thanks so much for supporting this very important cause. It means a great deal to us!

Jen, Charlie, Kesa, Grace, and Meghan
http://www.caringbridge.org/wi/alphagirls

1 comment:

Pinks & Blues Girls said...

I have to say... you just seem so incredible. I found your blog on Blogher.org and I just think that what you and your husband are doing is so wonderful. Your girls are beautiful... just beautiful. Bless you all.
- Audrey
Pinks & Blues