Friday, April 02, 2010

They're Here

It usually begins this time of year.

They come.

They come without me inviting them to my life.

They come like perfectly timed bombs.

They come to remind me.

They come to be remembered.

They bring the rawest guilt and grief even nearly 8 years since their first visit.

They find a way to unsettle me...unnerve me.

They are not wanted.

They are flashbacks of my pregnancies spiraling down the rabbit hole.

Severe preeclampsia robbed me of a normal pregnancy experience, whatever the hell that is.

It nearly claimed my life twice.

It nearly claimed the lives of my children.

It created two premature babies with lifelong side effects.

It changed my relationships with people.

It caused me post traumatic stress.

It is an evil beast I'd like to slay.

It was not fair.

It was not my fault.

It just happens to 12% of all pregnant women.

It happened to me.

It is unwanted here.

Yet, it reminds me of my precious gifts in Grace Ann and Meghan Rose.

So, I'll let severe preeclampsia and NICU flashbacks stay for a few days, but then they can "hit the bricks."

I'm ready to celebrate Grace and Meghan instead.


Good to See You

My brother, Tim, appears in this video at the 3:57 mark:

Thursday, April 01, 2010

Alpha-1 Sucks The Life Right Out of You

This video is a public service announcement from the Alpha-1 Foundation. I know it is controversial but in my opinion, it is a fabulous advertisement. It grabs your attention, and that is exactly what we need to get the word out about the prevalence of Alpha-1. 1 in 2500/3000 births is NOT RARE. It may be considered a rare disorder, but it is NOT RARE.

Saturday, March 27, 2010

Breathe Free Eva

I'm so sad to have learned that a beautiful young, amazing woman named Eva Markvoort went to Heaven today.

She courageously battled cystic fibrosis her entire life until she received a life saving double-lung transplant. Unfortunately, bronchiolitis obliterans took her life today.

I'm just so so sad. I've enjoyed reading her live journal entries for years. She lived life so amazingly and brought such an awareness of Cystic Fibrosis in Canada.

Breathe free now Eva. Breathe free. You will be missed and never forgotten.

http://65redroses.livejournal.com/

Wednesday, March 17, 2010

Happy Saint Patrick's Day

In honor of the Roney and Farmer family names, enjoy these pictures of Grace and Meghan wearing their green.





Sunday, March 14, 2010

Welcome baby Mallory

Our good friend, Tante, welcomed her 3rd precious little girl recently. Enjoy the pictures:



Saturday, February 13, 2010

Popcorn and Giggles

I smile
As I see
You both cuddle into
My bed

Bouncing as you go

Today is
A day for girls
Only
No boys allowed

Lighting up the atmosphere

About to begin
Today we bring
to you the
Grace & Meghan film fest

Popping corn

Preparing to view
Barbie's finest show
The Back Yardigans in style
All the while

Eating popped corn

Periodically
Bouncing up and down
Infectious laughter
Erupts

Giggling your way into Mama's heart girly style

Wednesday, February 03, 2010

Smile

As I paused to review how many gray hairs were standing straight up off my head in the mirror, I asked myself, “Who is this faded version of my former self? When the hell did you stop smiling?"

So, I smiled at myself, and guess what happened.

I walked out of the room, and smiled at both of my girls, who smiled in response.

“Hey Mom! Why are you so happy?” Meghan inquired.

I responded, “Because here you are in the middle of this messy room, playing Little Ponies and Barbies. Because Gracie is reading a chapter book all by herself over there. Because, neither one of you beautiful miracles were guaranteed to live. Because I can’t believe you’ve grown so much, and time is flying by. Because I'm your mommy.”

With a puzzled look upon her face, Megs replied, “Oh. I know I’m a miracle Mommy. I almost died a bunch of times when I was teeny, tiny preemie.”

It was almost as if she was telling me, “Duh! This isn’t news. Get with the program, Mom! We’re not preemies anymore.”

I giggled a little as Gracie lifted her head away from her book, and said, “Huh?”

Here I was having a deeply profound moment of life analysis, and my Gracie was safely soaking in the world of Junie B. Jones.

It was a 30-second moment of time that reached out and grabbed me. It said, "Pay attention! Keep being their advocate, but they are happy and secure. Oh, and, remember what you learned when you were a kid:

Play.

Laugh.

Learn.

Giggle.

Smile.

Enjoy."

If I can do this even for a few minutes each day, the happiness will slowly soak back into my every day.

So do me a favor, please.

Smile at yourself in the mirror, and then pay it forward. I’m already amazed at how much better I feel.

Monday, February 01, 2010

Friday, January 15, 2010

Welcome!

Today, I witnessed my niece, Chelsea Eve, being born. She was 8 pounds, 4 ounces.


Tuesday, January 12, 2010

From Smurfette to Equal Rights


As I ran the brush through Grace's wet hair after her shower, she played with some small figures of Smurfette. "Mommy, I love these gnomes. They are so cute."

"Grace, those aren't gnomes. They are called Smurfs."

"Well, I like to call them gnomes. This is my favorite. What are they called again?" she replied as she stroked Smurfette's plastic yellow hair.

"Smurfs."

"Oh."

"All of these smurfs are actually Smurfette. She was the only girl smurf when I was little. In fact, when the Smurfs first came on television, there were only boy smurfs."

"Hey Mom! That's not fair. Why was there only one girl?"

I was still working on finding her part, and found myself thinking it was a good opportunity to talk about how even in my lifetime that women's rights had some made strides...even if it was having girl representation in the Smurf community.

"Well, Grace, I don't know why it took some time for them to create a girl Smurf. Isn't it great that the shows you watch have lots of girls in them. Isn't it wonderful that every year that things change for the better?

In fact when my great grandmother was young, women didn't have the right to vote in elections. A group of women called the Suffragettes worked hard to make sure all women had the right to vote. You have some coins with the face of Susan B. Anthony on them. She was a Suffragette. It is cool to be a girl."

"I'm glad it is getting better because that wasn't fair."

"You are right Grace, but there are still people in the United States that aren't treated fairly. Remember how we talked about women who love women and men who love men, which is also called gay?"

"Uh huh. I remember."

"Well they still don't have equal rights in our country. Many would like to have the right to become married to one another. Right now, that isn't legal in all of the United States. I don't think that is fair."

"Me either, Mom. They are just two people who love each other. Are you sure they can't have a wedding?"

"Well, they can have a wedding, but the government doesn't recognize their marriage is real."

"It isn't fair Mom. Those ladies and men just love each other. Love can't be wrong. We're all special, but everyone is different. Jesus loved all of us. I learned that in religion class."

As I heard Grace representing a new generation of forward thinking (in my opinion), my heart swelled with pride, but I knew I had to remind Grace of one more thing.

"Gracie honey. I think it is wonderful that you believe in love, but I need you to remember something."

"What Mom?"

"There are and will be people you meet that don't believe what you do. There are people who think being gay is wrong, and that people who are gay should not be able to be married. You just be proud of what you believe, and don't be sad if others don't feel the same way you do. It takes a long time to help people change how they feel. Remember it took a long time for the Suffragettes to help give women the right to vote. It will take time, but I know in my heart that everyone will have the right to get married eventually. Make sense?"

"Uh huh, Mom. Can we dry my hair now?"

I smiled at her impetuous response.

Sunday, January 10, 2010

My Baby Girl

For the longest time
You bonded immensely
With your Daddy

So much so
That I worried
We wouldn't have a connection

I knew in my heart
That you loved me
But still I hoped

And prayed
That you would
Find a day

Where I would
Be of interest
And worthy of your excitement

Well here it is
My second born
Sweet precious miracle

Can't be without me
Rediscovered Mommy
And clutches me close

Fickleness aside
I've always known
You won't be little for long

Eventually
You'll grow faster
And faster

Explore more things
Outside the boundaries
Of our home

But you
Will always be
My baby girl

Sweet, mischievous
Gorgeous, precious
Meghan Rose

Saturday, January 09, 2010

Hamster Wheel

Can I buy
A Littlest Pet Shop
With my own money?

Can I? Can I?

Can you drive, Mom?
Can you? Can you?
It's my own money.

Can I? Can I?

As I reply
"Ok. Let's go!"
You don't hear

Can I? Can I?

Of course
I say
And a sparkle hits your eyes

Yahoo! Yahoo!

Let's go! Let's go!
Give me a moment
To fetch my purse

Yay! Yay!

We find the store
And the perfect pink aisle
As you pensively study each item

This one! This one!

It's soooooooo cute
See, it's a baby hamster
Oh yes, I do

Please! Please!

It's your money
Sweetie
I'm glad you like it

Wheeeee! Wheeeee!

Your glee
Warms and powers my heart
Like a hamster on a wheel

Monday, December 21, 2009

Happy Birthday Hailey

It is my Goddaughter Hailey's 2nd birthday today. As we celebrate her life, it is hard not to remember her identical twin sister, Mary Carol.

Isn't she beautiful?


Saturday, December 05, 2009

The Special Parts of You

Dear Gracie,

It is so easy to get wrapped up in daily life, and not realize how much you are growing and changing. You are no longer a little girl. You are a big girl, plain and simple. But you are also a girl who has Alpha-1 Antitrypsin Deficiency and sensory processing issues likely caused from your premature birth. Those, like any part of an identity, are just parts of you. Today, I’m focusing on your other parts. It is easy to get lost in the liver and lung issues, not to fail to mention the intrusive sensory issues plaguing you lately. So here goes…this, I hope, will help remind me that you are a person before any other medical diagnosis.

All things “kitty” are very important to you. The collage adorning your wall next to the bed pays homage to your love, love, love of kitties. Daily, you ask if you can get your very own kitten, and daily, I respond with an answer reminding you that our 11-year old cat would be none too pleased. A late addition to your Christmas wish list is surprise, surprise…shock of all shocks…a FurReal Teacup Kitten battery operated stuffed animal. Too bad this is one of the hottest toys, and your mom is currently scouring the world for that particular kitten in hopes of securing it as a Christmas gift. You know in your heart that if Mom doesn’t find it, then Santa and his elves will surely secure your most prized wish gift. Gulp. Better get crackin'!

Suddenly, your love of pink has left your soul. It has been replaced with blue or any other cool color that doesn’t represent being a “baby girl.” You are suddenly interested in my make-up, and you got over your first crush on your male teacher, no less. And now, you’ve moved on to Trevor, who is at the very least your age. Phew! Forgive me if I shudder at the thought of you having feelings for boys. You are, after all, my precious baby and always will be…no matter what happens.

School homework is the bane of your existence. Forgive me if I giggle a little about that. Your intelligence astounds me, and you don’t seem to know how smart you are. I know this fact is lost on you right now, but your mommy grew up with several learning disabilities that were poorly managed. Reading and writing and math did not come easily to me; yet here I am writing today. I love that irony. Your school is a language immersion school. You’ve already mastered that language in reading and writing, and without assistance, taught yourself to read, write, and spell in English. Wow.

You are still learning violin, and complaining about how much practice time it takes. I wonder how many times that violin will go back into the “violin shop” from various parts being damaged. You have no reverence for your expensive music instrument. It is just a violin to you, which goes along side the strewn about Junie B. Jones books you recently discovered and adore. Today, you used your bow like a crutch, and made me just a little bit crazy as you hobbled along your route. Of course, that was after you fell out of your chair at the dinner table…those darn sensory issues. Oops! I’m not focusing on those right now.

Most of all what has recently surprised me is your ability to reason. You see basic cause and effect now, which is, of course, through your eyes as a child, but your 7-year old brain has matured enough to recognize it. I’m going to enjoy watching you catch on to life’s subtleties, though. Your thinking is still mostly “black and white” but you surprise me when you notice a shade of gray here and there. It was particularly sweet when you remembered that not everyone has food on Thanksgiving.

I really could go on and on. I think this letter helped me today. You are not Alpha-1 Antitrypsin Deficiency or Sensory Processing Disorder. You are Gracie, and your momma couldn’t be more proud of you and your accomplishments. I can’t wait to witness the next parts of you to emerge.

Momma loves you Gracie girl.

Monday, November 30, 2009

1st Reconciliation

Grace celebrated the sacrament of Reconciliation for the first time tonight. We're so proud of her. Enjoy some pictures.





Sunday, November 29, 2009

Little Poet

With Grace in 2nd grade at our German school, she has really focused on her German writing. Recently, she has been given the chance to read/write in English, as well. Last weekend, she had an assignment to write a poem about a book she read. Here is what she came up with about the book, Junie B. Jones is Not a Crook, by Barbara Park.

Mom Jen guided her a bit at first, but Grace really took to the rhyming...here is her 1st poem ever:

Junie B. Jones got new mittens
They were soft like kittens
On pretend horses, she like to ride
"Somebody stole my mittens," she cried

Her teacher sent her to Lost & Found
Where she hoped her mittens would be safe and sound
The mittens were not there
So she went back to sit in her chair

The next day at recess, she looked over the playground
But they were no where to be found
Inside the school, the mittens Junie did spy
The Pink Fluffy Girl tried to hide

But finders keepers
Losers weepers
Is not a rule
In the school

Saturday, November 14, 2009

Laternenacht 2009

Laternenacht is a tradition at the girls' school. In Germany, it is the feast of Saint Martin, who gave clothes and food to the poor. Laternenacht is translated as Latern Night. The school held a food drive, and the culmination is Laternenacht where the kids sing traditional songs about fall and their laterns which light the night during a processional.